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Showing posts from February, 2024

The Beginning

In four days, I go to get a second opinion of whether I have Lewy Body Disease or not. What a funny spot to be in. Hoping it is so it can explain what has been going on these past few years, and hoping it is not because I don't want to go through what can happen in the coming years. And yet, here I sit, worried about both outcomes and wanting neither. So many emotions in just the past 4 months when the Doctor used the words Diffused Lewy Body Disease. Lots of tears and "What am I going to do now" questions. So many "oh, so that's why" moments where the working diagnosis seems to explain so much of why these past few years have been so difficult. It started because I couldn't remember words; simple every day, nothing out of the ordinary, words. Conversations with friends became difficult as I tried to share my thoughts on a particular subject. It was half storytelling and half the game of Password, trying to help my partner figure out the word I could not...